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Enhancing research
through public
involvement:
A workshop for
researchers
Welcome from
Bec, Derek and Sarah
www.becandderek.co.uk
Bec and Derek
a collaboration
Bec Hanley
Research adviser
“There is no either / or
between being
competitive and collaborative.
You have to be both and
decide which in each
situation.”
Cathie Black, Former Chairman and
President, Hearst Magazines
Derek Stewart
Patient advocate
Bec and Derek
Housekeeping
• What to do if the fire alarm goes off
• Toilets
• Mobile phones – please turn them
off
• Any questions?
Bec and Derek
Aim for today
Our aim:
• To think with you about how involvement can
improve research ideas, design, delivery and
dissemination/application.
• What do you want from this session?
Bec and Derek
Terms we will use
PARTICIPATION
Access to and taking part in
a
research study
INVOLVEMENT
Actively assisting with the
research process
UK Clinical Trials Gateway
www.ukctg.nihr.ac.uk
Involve
www.invo.org.uk
ENGAGEMENT
Meeting and talking about research
National Centre for Public Engagement
www.publicengagement.ac.uk
Bec and Derek
Involvement
• People who use services are active partners in
research rather than the ‘subjects’ of research.
• It is about doing research with or by patients
and the public, not doing research to patients
and the public.
This is NOT the same as participation (e.g.
taking part in a clinical trial)
Bec and Derek
Some labels…
Many different words are used to describe people
who get involved…
• Patients
• Public
• Service users
•Carers
• Lay people
• Consumers
• Research partners
Bec and Derek
What do you want to improve about
your current or planned research?
How can involvement improve
research?
•
•
•
•
Ideas stage
Design stage
Delivery stage
Dissemination stage
Think about…
• How might involving patients/the public help?
• Who specifically could help you?
• How might you go about finding them?
Sources of Further Information
www.becandderek.co.uk
Thank you for attending
• Contact…
[email protected]
@ppisqueek
@bechanley1
Who were they?
What were their names, again?
www.becandderek.co.uk
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